Tag Archives: palliative care

Priorities in Palliative and End-of-Life Care: Public Consultation

The ‘Palliative and End of Life Care Priority Setting Partnership’ has initiated a public consultation on research priorities. Service users, families, carers and health professionals are invited to participate in a brief survey identifying the issues they feel need most attention from research and funders.

The survey can be accessed here: http://www.palliativecarepsp.org.uk/

‘Case stories’ on transnational dying

‘Case Stories’ is an interdisciplinary project on transnational dying. The project aims to better understand the pain of social exclusion, inequality and injustice at the end of life through stories.

Yasmin picThe Case Stories website contains a wealth of information on dying as a migrant, ranging from personal accounts of using palliative care services to artwork and poetry inspired by people’s stories.

The project is the brainchild of Sociologist Yasmin Gunaratnam and supported by a British Academy Fellowship. 

The Open Society Foundations

For those readers interested in access to palliative care world-wide, we would like to draw attention to the work of the Open Society Foundations.

The Open Society Foundations work to ‘build vibrant and tolerant societies whose governments are accountable and open to the participation of all people’. 

The Health Programme, one of five core programmes, supports initiatives to make palliative care a part of public health systems worldwide. The Open Society Foundations has supported efforts to have palliative care recognised as a human right and campaigns for improved access to pain relief.

For more information on click here.

 

What are the priorities for developing culturally appropriate palliative and end-of-life care for older people?

A research team from New Zealand has recently published an article on the priorities for developing culturally appropriate palliative and end-of-life care for older people.

Bellamy and Gott (2013) What are the priorities for developing culturally appropriate palliative and end-of-life care for older people? The views of healthcare staff working in New Zealand. Health and Social Care in the Community. 21(1), 26–34

The abstract is reproduced below and the full article can be accessed here.

Abstract

This paper explores the views of healthcare staff regarding the provision of culturally appropriate palliative care for Māori, PacificIsland and Chinese elders living in Auckland, New Zealand. The ageing population is culturally and ethnically diverse and, along with other developed countries experiencing high levels of migration, the challenge is balancing the rise in numbers of older people from different ethnic and cultural groups with end-of-life care, which reflects personal values and beliefs. Two joint interviews and ten focus groups were conducted with eighty staff across a range of primary, secondary and speciality care settings in 2010. The findings demonstrated that participants viewed the involvement of family as fundamental to the provision of palliative care for Māori, PacificIsland and Chinese elders. For Māori and Pacific Islanders, healthcare staff indicated the importance of enabling family members to provide ‘hands-on’ care. The role of family in decision-making was fundamental to the delivery of and satisfaction with care for older Chinese family members. Care staff highlighted the need to be cognisant of individual preferences both within and across cultures as a fundamental aspect of palliative care provision. The role of family in ‘hands-on’ palliative care and decision-making requires care staff to relinquish their role as ‘expert provider’. Counter to the prioritisation of autonomy in Western health-care, collective decision-making was favoured by Chinese elders. Providing families with the requisite knowledge and skills to give care to older family members was important. Whilst assumptions are sometimes made about preferences for end-of-life care based on cultural values alone, these data suggest that care preferences need to be ascertained by working with family members on an individual basis and in a manner that respects their involvement in palliative care provision.

Vacancy: full time early stage or junior researcher for research on palliative care in dementia (Belgium)

European Research Project EURO IMPACT  “European Intersectorial and Multi-disciplinary Palliative Care Research Training” (EU 7th Framework Programme) is looking for a full time early stage or junior researcher (m/f) for research on palliative care in dementia (Belgium)

EURO IMPACT aims to develop a multi-disciplinary, multi-professional and intersectorial educational and research training framework in Europe, aimed at monitoring and improving the quality of palliative care in Europe. The consortium of EURO IMPACT involves 11 partners from 6 European countries, representing a number of disciplines and professions, and trains 12 early stage researchers and 4 experienced researchers in scientific and complementary skills. The End-of-Life Care Research Group of the Vrije Universiteit Brussel in Brussels, Belgium, directed by Prof. dr. Luc Deliens, coordinates the project. Project website: www.euro-impact.eu

General Job Description• conducting research in the field of palliative care for people with dementia and this in a European context • writing papers for peer reviewed journals • making a doctoral dissertation • working with existing databases and/or within existing European research projects • collaborating with other researchers across Europe

Research project: • Provision of high quality palliative care for people with dementia is a major challenge for future health care • Aim of this project is to describe and compare quality of palliative care for patients with dementia in different European countries • Different aspects of quality of care will be studied eg communication, end-of-life decision-making, advance care planning, use and accessibility of palliative care, aggressiveness of care and treatments received at the end of life, and quality of dying, using a number of retrospective and prospective data that have been or are being gathered across Europe

Condition of mobility• You should be prepared to be based in Belgium • You cannot have resided/worked in Belgium for more than 12 months over the past 3 years

General Job Profile and required Skills • MSc or MA in psychology, sociology, health sciences, medicine, nursing, anthropology, philosophy, epidemiology or other related discipline or an equivalent degree which formally entitles someone to embark on a doctorate • less than 4 years of full-time research experience • fluent in written and oral English • team player • able to work independently • basic computer skills • research knowledge and skills • commitment to palliative care

Work site: •Vrije Universiteit Brussel, End-of-Life Care Research Group, Brussels, Belgium

What we offer• full time research position for 3 years in Belgium, starting as soon as possible • a research training programme (on-the-job training, structured training courses, networkwide training) provided by institutes at the forefront of palliative care research, focusing on scientific and complementary skills training such as societal dissemination to a wider international audience • monthly salary with full social security coverage  • during 16 months you receive additional monthly mobility allowances (ie €500/month) and annual travel allowances • Also included is a €2000 career exploratory allowance and a training and research budget.

Interested? •Please send your curriculum vitae including (1) research experience and duration; (2) academic and professional qualifications and grades; (3) country of current residence and experience/stays abroad to Prof. dr. Lieve Van den Block, Vrije Universiteit Brussel, End-of-Life Care Research Group: lvdblock@vub.ac.be

More information? •Prof Lieve Van den Block • lvdblock@vub.ac.be • Tel +32 474 78 18 72 • www.euro-impact.eu

Deadline: Dec 10th 2012

Upcoming end-of-life care conferences

For those of you interested in the global development of palliative care – here are a couple of dates for your diaries….

 

 

 

Research Associate – University of Cambridge

The Institute of Public Health, University of Cambridge,  is advertising a research position in their End of Life Care Group. Candidates should have experience of qualitative and quantitative research in Health Services and/or End of Life Care.

Application deadline: 15 October 2012

For more information click here.