Tag Archives: Norway

Culture Is a Priority for Research in End-of-Life Care in Europe: A Research Agenda

We are pleased to announce that the Journal of Pain and Symptom Management has published the PRISMA project’s research agenda for culture and end-of-life care as a special article.

The abstract can be found below and the full article can be accessed here.

Abstract

Context

Culture has a profound influence on our understanding of what is appropriate care for patients at the end of life (EoL), but the evidence base is largely nonexistent.

Objectives

An international workshop was organized to compile a research agenda for cultural issues in EoL research, and assess challenges and implications of the integration of the culture concept in different contexts.

Methods

Participant experts were identified from the expert network established through an Internet-based call for expertise on culture and EoL care and from meetings. The workshop comprised presentations of research priorities from country and disciplinary perspectives, and group discussions. Analysis used all data gathered in the workshop and applied standard qualitative techniques.

Results

Thirty experts participated in the workshop and identified the following priorities for cross-cultural research: 1) clarifying the concepts of culture and cultural competence; 2) defining EoL in a context of social and cultural diversity, with a focus on concepts of EoL care and bioethics, experiences of receiving and giving EoL care, and care practices in different settings; and 3) developing appropriate methodologies and outcome measurements that address diversity.

Conclusion

This first pan-European meeting compiled a research agenda, identifying key areas for future research focusing on culture, diversity, and their operationalization. This requires international and multidisciplinary collaboration, which is necessary in the current efforts to synthesize best practices in EoL care.

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

A recently published article from the PRISMA project provides a general overview of cultural issues in end of life care in seven European countries.

The abstract can be found below or the full article can be accessed here.

Aim

Culture is becoming increasingly important in relation to end of life (EoL) care in a context of globalization, migration and European integration. We explore and compare socio-cultural issues that shape EoL care in seven European countries and critically appraise the existing research evidence on cultural issues in EoL care generated in the different countries.

Methods

We scoped the literature for Germany, Norway, Belgium, the Netherlands, Spain, Italy and Portugal, carrying out electronic searches in 16 international and country-specific databases and handsearches in 17 journals, bibliographies of relevant papers and webpages. We analysed the literature which was unearthed, in its entirety and by type (reviews, original studies, opinion pieces) and conducted quantitative analyses for each country and across countries. Qualitative techniques generated themes and sub-themes.

Results

A total of 868 papers were reviewed. The following themes facilitated cross-country comparison: setting, caregivers, communication, medical EoL decisions, minority ethnic groups, and knowledge, attitudes and values of death and care. The frequencies of themes varied considerably between countries. Sub-themes reflected issues characteristic for specific countries (e.g. culture-specific disclosure in the southern European countries). The work from the seven European countries concentrates on cultural traditions and identities, and there was almost no evidence on ethnic minorities.

Conclusion

This scoping review is the first comparative exploration of the cultural differences in the understanding of EoL care in these countries. The diverse body of evidence that was identified on socio-cultural issues in EoL care, reflects clearly distinguishable national cultures of EoL care, with differences in meaning, priorities, and expertise in each country. The diverse ways that EoL care is understood and practised forms a necessary part of what constitutes best evidence for the improvement of EoL care in the future.

Powerpoint Presentations

In response to popular demand we have uploaded the presentations made by both members of our team and external experts at various conferences.

International Meeting on Culture and End of Life Care
Vic, Spain, 17-18 May 2010

17th May

WP1 Work

Culture and end of life care

Key cultural issues in end-of-life care in three Mediterranean countries

Cultural Competency Models

Culture in Different Settings

Culture in Different Settings: Priorities from a UK perspective

Culture in different settings: Priorities from a Belgian perspective

Culture in different setting: Priorities from a Norway perspective

18th May

Spirituality in End of Life Care

Spirituality in End of Life Care

Conscientious objections: a neglected topic in culture and end end-of of-life care

Dignity

Dignity for the frail old

End of Life Decision Making

End-of-life decisions in Belgium: Attitudes and practices

Practices and attitudes regarding end-of-life decisions in Spain

Communication

End of life Cultural, Social, Ethical, Legal perspectives

Telling the truth or conserving hope? An Italian deep-rooted contradiction

Cultural Competency and Minority Ethnic Groups

Cultural Vulnerability, Care and Ethics

Cultural competence and communication in palliative care for Turkish and Moroccan immigrants in the Netherlands

11th Congress of the EAPC
Vienna, Austria, 7-10 May 2009

A call for expertise for the development of a European network of experts on culture and end of life care

Making Culture Relevant to End End-of of-Life Practice: An Overview of Approaches to Cultural Competency

What does culture mean? An analysis of the role of culture in Spanish end- of-life care literature

Some Critical Comments on “Culture” and “Competence”

European conference ‘Dignity for the Frail Old’

Many of you may be interested in the up coming conference ‘Dignity for the Frail Old’, which will be held in Bergen (Norway) September 2th – 5th 2010.

The following information comes from the conference organisers:

We have the pleasure to invite you to our European Conference: Dignity for the Frail Old at Solstrand Fjord Hotel close to Bergen, Norway, September 2th – 5th 2010.

In the program international key-note speakers will give state-of-the art presentations to central topics regarding dignity for the frail old, followed by extended possibilities of the participants for exchange of their experiences and recommendations for action.

The famous Conference-Hotel lies at a Fjord in the most beautiful Norwegian surroundings, and offers outstanding housing and conference facilities. Clinton was there. Cicely Saunders and Balfour Mount where there, Albert Einstein and Sigmund Freud also. You will not forget this place!

We have reserved the whole hotel capacity for this conference, limited to 140 participants. The interest for the conference is already huge, so we recommend early registration.

For more information and registration, look at our website: www.dignityold.com