The ‘Palliative and End of Life Care Priority Setting Partnership’ has initiated a public consultation on research priorities. Service users, families, carers and health professionals are invited to participate in a brief survey identifying the issues they feel need most attention from research and funders.
The survey can be accessed here: http://www.palliativecarepsp.org.uk/
The University of Lancaster is seeking to recruit a Research Associate to work on a multi-centre advance care planning randomised control trial in six European countries. The post will be based in The International Observatory on End of Life Care within the Division of Health Research.
For more information click here
‘Case Stories’ is an interdisciplinary project on transnational dying. The project aims to better understand the pain of social exclusion, inequality and injustice at the end of life through stories.
The Case Stories website contains a wealth of information on dying as a migrant, ranging from personal accounts of using palliative care services to artwork and poetry inspired by people’s stories.
The project is the brainchild of Sociologist Yasmin Gunaratnam and supported by a British Academy Fellowship.
The University of Bath is offering a PhD studentship as part of a project on care and costs at the end of life. The studentship will focus on inter-generational relationships between adult children and their parents in organising, and paying, for end of life care and associated expenses.
Applicants from a range of social science backgrounds (sociology, social policy, social work, gerontology, cultural studies, gender studies, anthropology, and economics), with experience in qualitative methods and an awareness of the policy implications of end of life care issues, are encouraged to apply.
Find more information here.
For those readers interested in access to palliative care world-wide, we would like to draw attention to the work of the Open Society Foundations.
The Open Society Foundations work to ‘build vibrant and tolerant societies whose governments are accountable and open to the participation of all people’.
The Health Programme, one of five core programmes, supports initiatives to make palliative care a part of public health systems worldwide. The Open Society Foundations has supported efforts to have palliative care recognised as a human right and campaigns for improved access to pain relief.
For more information on click here.
A research team from New Zealand has recently published an article on the priorities for developing culturally appropriate palliative and end-of-life care for older people.
Bellamy and Gott (2013) What are the priorities for developing culturally appropriate palliative and end-of-life care for older people? The views of healthcare staff working in New Zealand. Health and Social Care in the Community. 21(1), 26–34
The abstract is reproduced below and the full article can be accessed here.
This paper explores the views of healthcare staff regarding the provision of culturally appropriate palliative care for Māori, PacificIsland and Chinese elders living in Auckland, New Zealand. The ageing population is culturally and ethnically diverse and, along with other developed countries experiencing high levels of migration, the challenge is balancing the rise in numbers of older people from different ethnic and cultural groups with end-of-life care, which reflects personal values and beliefs. Two joint interviews and ten focus groups were conducted with eighty staff across a range of primary, secondary and speciality care settings in 2010. The findings demonstrated that participants viewed the involvement of family as fundamental to the provision of palliative care for Māori, PacificIsland and Chinese elders. For Māori and Pacific Islanders, healthcare staff indicated the importance of enabling family members to provide ‘hands-on’ care. The role of family in decision-making was fundamental to the delivery of and satisfaction with care for older Chinese family members. Care staff highlighted the need to be cognisant of individual preferences both within and across cultures as a fundamental aspect of palliative care provision. The role of family in ‘hands-on’ palliative care and decision-making requires care staff to relinquish their role as ‘expert provider’. Counter to the prioritisation of autonomy in Western health-care, collective decision-making was favoured by Chinese elders. Providing families with the requisite knowledge and skills to give care to older family members was important. Whilst assumptions are sometimes made about preferences for end-of-life care based on cultural values alone, these data suggest that care preferences need to be ascertained by working with family members on an individual basis and in a manner that respects their involvement in palliative care provision.
The University of Sheffield is advertising for a Post-doctoral Research Fellow to work on a EU project on health technology assessment for complex interventions using a specialist palliative care as a case study.
For more information click here.