This blog provides a space for the exploration of cultural issues in end-of-life care.
It came about as part of the PRISMA project. PRISMA was a EU FP7 programme which aimed to inform best practice and harmonise research in end-of-life care for cancer patients across Europe through comparison and exchange of approaches and experiences in measurement and research priorities. PRISMA included a work package on the influence of culture on end-of-life care.
The aim of the blog was originally to disseminate the results of the work package on culture and end-of-life care. It has however evolved into a space for the exchange of ideas, the announcement of relevant events and conferences, the review of books and research articles, and the posting of job and funding opportunities.
The blog has, most importantly, become a meeting place for the growing number of researchers across the globe who are interested in the intersection between culture and ageing, death and dying.
A little bit more about our regular contributors:
Dr. Marjolein Gysels
She has carried out ethnographic research in D.R. Congo on Swahili and oral literature. She also worked on HIV/AIDS related projects in Tanzania focusing on female infertility, commercial sex workers and truck drivers. Then, since 2001, at King’s College London, she started with research on palliative care. This included collaborating on a project concerning tool development, and on the writing of the Research Evidence Manual, which is part of the NICE Guidance for Supportive and Palliative Care. Later she was involved in the literature scoping on the delivery and organisation of generalist services for adults at the end of life for a project funded by the UK NHS Service Delivery and Organisation (SDO). She also managed a programme on breathlessness in advanced and progressive disease.
In 2006, she joined CRESIB at the University of Barcelona, where she managed a programme investigating the acceptability of intermittent preventive treatment in Infants (IPTi), in five African countries. She led a component of the EU FP7 PRISMA project aimed at developing understanding of cultural issues in end of life care. Since the beginning of 2012 she is working at the University of Amsterdam where she is involved in the setting up of a Centre for long-term care and dementia.
Natalie Evans is a Marie Curie PhD training fellow at Vrije Universiteit, Amsterdam. She is currently working on her PhD “Experiences of End-of-Life Care: Similarities and Differences across Europe”. Previously she worked as a Social Science Research Fellow at CRESIB Barcelona on the PRISMA work package on cultural issues in end-of-life care.
Before getting involved in palliative care research, Natalie conducted research on livelihoods, poverty and social vulnerability in Karen villages in Mae Hong Son province, Thailand and on attitudes towards environmental degradation and conservation practices amongst Thai and Hmong farmers in Chiang Mai province, Thailand.
Natalie obtained her MSc in Anthropology from University College London and BSc (hons) in Biological Sciences from the University of Edinburgh.
Please contact Natalie if you would like to make a guest blog post or have any other suggestions: firstname.lastname@example.org.