Monthly Archives: August 2012

Still/Here (1997)

The dance ‘Still/Here’ was created by the dancer/choreographer Bill T. Jones based on a series on workshops he conducted across America with people suffering from terminal illnesses.

The workshops allowed participants to share their stories, hopes and fears and express themselves through movement.

The footage of these workshops shown in the documentary reveals participants tentatively producing movements to reflect their biographies or describing spontaneous movements, with often poetic results.

Workshop participants words and movements were incorporated into the dance Still/Here and interpreted by professional dancers.
If the below video fails to load – the documentary can be accessed here

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Culture Is a Priority for Research in End-of-Life Care in Europe: A Research Agenda

We are pleased to announce that the Journal of Pain and Symptom Management has published the PRISMA project’s research agenda for culture and end-of-life care as a special article.

The abstract can be found below and the full article can be accessed here.

Abstract

Context

Culture has a profound influence on our understanding of what is appropriate care for patients at the end of life (EoL), but the evidence base is largely nonexistent.

Objectives

An international workshop was organized to compile a research agenda for cultural issues in EoL research, and assess challenges and implications of the integration of the culture concept in different contexts.

Methods

Participant experts were identified from the expert network established through an Internet-based call for expertise on culture and EoL care and from meetings. The workshop comprised presentations of research priorities from country and disciplinary perspectives, and group discussions. Analysis used all data gathered in the workshop and applied standard qualitative techniques.

Results

Thirty experts participated in the workshop and identified the following priorities for cross-cultural research: 1) clarifying the concepts of culture and cultural competence; 2) defining EoL in a context of social and cultural diversity, with a focus on concepts of EoL care and bioethics, experiences of receiving and giving EoL care, and care practices in different settings; and 3) developing appropriate methodologies and outcome measurements that address diversity.

Conclusion

This first pan-European meeting compiled a research agenda, identifying key areas for future research focusing on culture, diversity, and their operationalization. This requires international and multidisciplinary collaboration, which is necessary in the current efforts to synthesize best practices in EoL care.